自閉症のティーンに力を与える 慢性疼痛を克服するための新しい臨床家のアドバイス(Empowering Autistic Teens: New Clinician Advice for Navigating Chronic Pain)

ad

2024-02-22 バース大学

自閉症のティーンエイジャーが慢性疼痛と共に生活する際、治療を受けることは困難になることがある。自閉症の理解不足や自身の感覚過敏さ、他の同年代との異なる感覚から、一般的な心理的な治療が特に難しい。そのため、バース大学のアビー・ジョーダン博士らは、自閉症の青年向けの疼痛クリニックでの治療を容易にする新しい臨床ガイドラインを提案し、このガイドラインは自閉症の青年の体験を理解し、疼痛とその影響を管理する能力を向上させることを目指している。

<関連情報>

慢性疼痛が自閉症青年に与える影響の理解と効果的な疼痛管理:反射的主題分析による青年と母親のダイアド研究 Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent–maternal dyadic study

Abbie Jordan, PhD, Amelia Parchment, PhD, Jeremy Gauntlett-Gilbert, PhD, DClinPsy, Abigail Jones, PhD, Bethany Donaghy, MSc, Elaine Wainwright, PhD, Hannah Connell, DClinPsy, Joseline Walden, MSc, David J Moore, PhD
Journal of Pediatric Psychology  Published:07 February 2024
DOI:https://doi.org/10.1093/jpepsy/jsae004

自閉症のティーンに力を与える 慢性疼痛を克服するための新しい臨床家のアドバイス(Empowering Autistic Teens: New Clinician Advice for Navigating Chronic Pain)

Abstract

Objective
Sensory elements are core features in chronic pain and autism, yet knowledge of the pain experience in autistic adolescents is limited. Little is known regarding how autistic adolescents experience chronic pain, manage their pain and perceive psychological treatment for their chronic pain.

Methods
Ten autistic adolescents (6 female, 3 male, and 1 self-identified as agender) with chronic pain and their mothers (n = 10) participated in semistructured interviews concerning their perceptions of living with chronic pain. Participants were recruited from U.K. pain management services. According to preference, interviews were conducted individually (n = 10) or dyadically (n = 10 participants across 5 dyads). Data were analyzed using inductive reflexive thematic analysis.

Results
Two themes were generated. Theme 1, “overstimulated and striving for control” described how adolescents’ experience of heightened sensitivity enhanced adolescents’ levels of anxiety and subsequent pain, illustrating a reciprocal relationship between anxiety, pain, and sensory elements. Theme 2, “not everyone fits the mold” captured how autistic adolescents positioned themselves as distinct from others due to the unique nature of being autistic and living with pain. This sense of difference negatively impacted adolescents’ ability to engage with and benefit from the standard treatment for chronic pain.

Conclusions
Findings suggest that autistic adolescents living with pain experience pain and face barriers to effective pain treatment. Our results identify the need for educational resources to facilitate clinicians to better understand the experience of autistic adolescents living with pain. In turn, such understanding may improve treatment and outcomes in this population.

医療・健康
ad
ad
Follow
ad
タイトルとURLをコピーしました